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A Community in Support of Those Affected by Alzheimer’s

Are you or someone you know affected by Alzheimer’s disease?

How do we address Alzheimer’s in communities of color?

As of now, there is still no cure for Alzheimer’s disease. And one of the biggest challenges to understanding, treating, and preventing Alzheimer’s disease is the fact that most of what scientists and doctors do know is based on white Americans with Alzheimer’s. They know much less about non-white groups.

 

That’s why it’s so important for scientists to learn as much as they can about how Alzheimer’s happens and progresses in the body, who gets Alzheimer’s, and what makes certain people — Black folks, for example — more likely to develop the disease than others.

Here’s the truth. When it comes to medical research, we aren’t all included – not the way we should be, and not the way we can be.

People of Color make up 40 percent of the U.S. population, but there’s a real lack of diversity when it comes to people participating in genetic testing and clinical trials. That’s why certain medications don’t work for Black people, Hispanics and other People of Color, and that’s only scratching the surface. Let me put it this way: we’re underrepresented, which has only widened the number of healthcare disparities for us. That’s a problem, so let’s fix it.

 

Regardless of your own individual risk, chances are that at least one of the loved ones in your life will develop Alzheimer’s disease. One of the most important ways you can help is to continue to learn about the causes, risk factors, and warning signs of Alzheimer’s and to get involved with projects that help scientists learn more about treatment and prevention of Alzheimer’s.

About the Alzheimer’s Community

We are a community that shares stories and supports anyone affected by Alzheimer’s disease. We are here to be informative, relational, helpful, and supportive. By joining this community, you will find engaging content about preventative care, clinical research, and funding options from experts and people just like you.

What We Offer

  • Community Engagement
  • Clinical Research Opportunities
  • Educational Forums
  • Shared Perspectives

How to Get Started

  • 1

    Download & Install

    Download and install our app from Google Play or the Apple App Store.

  • 2

    Create Account / Login

    Open the app and enter your credentials to create an account.

  • 3

    Find Your Community

    Explore and connect with communities underneath the ‘Communities’ tab.

  • 4

    Get Involved

    Now you can start liking, commenting, sharing, or creating your own posts.

Frequently Asked Questions

Who can participate?

We are an inclusive community for everyone whose life has been impacted by Alzheimer’s disease. You may be a patient, a parent, caregiver, or more. We want you to feel supported, informed, and cared for by our community.

Who created this community?

Our community was created for people who are passionate about Alzheimer’s and want to contribute to research that could impact the development of new equitable medicines for the future. Our goal is to be included in all health conversations. Our goal is a healthier community that is actively taking control of their health and having a colonoscopy for prevention.

How do I sign up?

Follow the link here to answer a few questions and join the community. After a few simple steps, you will be a member of the community.

Why join?

Joining this community is a smart decision to help you be included in the conversation and innovations surrounding Alzheimer’s disease. We want to support you through providing insights on preventative care, information on clinical research programs, and access to financial resources.

What will I be asked to do?

As a community member, you can actively post your insights, questions, and any information that can be helpful and supportive to others or, you can also choose to just read, comment, and like posts.