Rare Diseases

Access guides, articles, and resources specific to your condition to make better informed health decisions.


Join us in celebrating World Kidney Day and National Kidney Month with our #MyKidneysAreINCLUDED 30 Day Challenge! Read more…


Being told you or someone you love has cancer can be life-changing. Sometimes, you hear about positive outcomes, but…

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AL Amyloidosis is a rare disease that occurs when certain blood cells produce abnormal proteins

In the US, a rare disease is defined as a “disease or condition that impacts

Belinda is a woman of color diagnosed with AL amyloidosis. AL amyloidosis is a rare

Common chronic diseases like diabetes and high blood pressure aren’t the only conditions that Black
SCD can be challenging to live with, here are a few steps you can take
Learn more about AL Amyloidosis, key risk factors and its impact on communities of color


Kidney health matters! Did you know that kidney disease impacts about 37 million people in

You may have heard of clinical research, also known as clinical trials or clinical studies,

Fortitude Fitness Expo
The Fortitude Fitness Expo, held on May 4, 2024, at Beulah Missionary Baptist Church, showcased
Find answers to commonly asked questions about clinical studies.
Wearable technology is changing how we monitor our heart health at home. Learn more about
Read about the impact of Kidney Action Week on Black lives.

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