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Clinical Research Perspectives:
UAB Community Dissemination Institute

We asked community health advisors their thoughts on diversifying clinical research. Here’s what they had to share.

Community healthcare workers and patient advocates play an important role in bringing opportunities to communities of color.

NOWINCLUDED attended the UAB Community Dissemination Institute to learn about the challenges faced when offering community members information about clinical research and how we can increase access to research studies.

Thank you for sharing your perspectives with us! Check out a summary of what we gathered below.

By the Numbers

Here’s how you are helping us make an impact.

Survey
Submissions

Stories
Recorded

Attendees During Breakout Sessions

~ 0

What you shared

Here are the resources and ways that influence you and your community’s decisions about participating in clinical studies:

More information & education

Financial assistance for medications

Media and ad representation

Attending live events or health fairs

Here are the types of community education and outreach programs you think would best support increasing awareness and participation in clinical studies:

58%

In-Person Events

50%

Emails

45%

Social Media

28%

Webinars

You answered: How effective have pharmaceutical companies been in reaching out to and partnering with your community to promote clinical study participation?

Very effective

18.6%

Somewhat effective

24.3%

I’m not sure

37.9%

Somewhat effective

7.3%

Not effective at all

11.9%

Learn More About Clinical Research

YOUR IDEAS FOR CHANGE

When asked about successful examples of collaboration between pharmaceutical companies and community organizations to increase clinical study participation, you shared:

Community representatives

“First they gotta come into the community. We'll send a representative to the community, because if we don't know what's going on, how do we know?”

Medicine samples

“I think pharmaceutical companies should give the doctors more samples of that medication to give to that patient, in order to let them see if that's what they really can take.”

Local activations

“I think community leaders can express clinical trials by having setups at the local parks through churches and some school activities.”

THANKS FOR JOINING US

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Clinical Research Perspectives: UAB Community Dissemination Institute