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Inflammatory Bowel Disease (IBD)

Caring for your gut health takes a village. Find resources to support you on your IBD journey.

What Is Inflammatory Bowel Disease (IBD)?

Inflammatory bowel disease (IBD) is a group of chronic conditions that cause inflammation in the digestive tract. The two main types are:

  • Crohn’s disease, which can affect any part of the digestive system
  • Ulcerative colitis, which affects only the colon and rectum

Both can cause long-term symptoms, flares, and damage to the gut if left untreated.

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Symptoms of
Inflammatory Bowel Disease (IBD)

Symptoms of IBD can come and go, and often get misdiagnosed as stress, food allergies, or irritable bowel syndrome (IBS). Know the signs:

Gut Health

STOMACH PAIN & CRAMPING

  • Often in the lower belly or sides bowel

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DIARRHEA OR URGENCY

  • Frequent, loose stools, sometimes with blood or mucus

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UNEXPLAINED WEIGHT LOSS

  • Losing weight without trying

STOMACH PAIN & CRAMPING

  • Often in the lower belly or sides bowel

DIARRHEA OR URGENCY

  • Frequent, loose stools, sometimes with blood or mucus

UNEXPLAINED WEIGHT LOSS

  • Losing weight without trying

Want more information about this condition?

If you're experiencing these symptoms, advocate for a GI referral and testing like a colonoscopy or stool analysis.

Managing Flareups of Asthma

Living with asthma? Our community member, Eriel, knows a thing or two about
managing flare-ups or asthma attacks.

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Risk Factors
for Inflammatory Bowel Disease (IBD)

Here are a few factors that might put you at risk for IBD:

  • Family History: If a close relative has Crohn’s or ulcerative colitis, your risk is higher
  • Race: IBD rates are increasing among Black individuals, though research and treatment guidelines haven’t caught up
  • Age: Most diagnoses occur between ages 15–35
  • Smoking: Raises your risk for Crohn’s and worsens flares
  • Chronic Stress: Can trigger flares or worsen symptoms
  • Nutrition: Certain foods may aggravate symptoms, especially during flare-ups
  • Access to Care: Early diagnosis and regular monitoring can prevent long-term damage
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Managing and Preventing Inflammatory Bowel Disease (IBD)

IBD doesn’t have a cure, but with the right tools and team, you can manage flares, reduce complications, and live a full life.

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Medications & Treatment Options

  • Anti-inflammatory drugs: Help reduce gut inflammation
  • Immune system suppressors: Calm the overactive immune response
  • Biologics: Target specific proteins that drive inflammation (like Humira, Remicade)
  • Surgery: Sometimes needed for severe Crohn’s or when complications occur
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Nutrition & Gut Health

No one-size-fits-all diet, but many find relief with:

  • Low-fiber diets during flares

  • Avoiding trigger foods like dairy, caffeine, or fried foods

  • Adding probiotics and nutrient-rich foods when in remission

  • Work with a nutritionist familiar with IBD and cultural food preferences

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Accessing Clinical Studies

Clinical studies give you access to the latest treatments, but Black people remain underrepresented in research:

  • Ask your doctor if there are studies you might qualify for.
  • Learn how studies work, what they cost (often free!), and what questions to ask.

Managing Lung Cancer

When found early, lung cancer can be treated more effectively, but Black people are less likely to be offered curative treatments like surgery. Empowering our community with knowledge and advocacy can help close that gap.

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Medications

Common types of blood pressure medications include:

  • Diuretics (“water pills”): Help your body get rid of extra salt and water
  • ACE inhibitors & ARBs: Help relax your blood vessels
  • Calcium channel blockers: Help slow your heartbeat and ease vessel tension
  • Beta blockers: Reduce your heart rate and how hard it works
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Everyday Strategies

  • Reduce Salt: Aim for less than 1,500 mg per day
  • Manage Stress: Therapy, prayer, breathing exercises, joy
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Lifestyle Support

  • Eat Smart: Whole foods, fruits, veggies, low-fat dairy, whole grains
  • Move More: 30 minutes of activity most days
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Treatment Options

  • Surgery: To remove tumors when possible
  • Radiation Therapy: Uses high-energy rays to kill cancer cells
  • Chemotherapy: Destroys cancer cells throughout the body
  • Targeted Therapy & Immunotherapy: Newer options that use the body’s immune system to fight cancer
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Managing Side Effects and Recovery

  • Talk with your care team about fatigue, nausea, or trouble eating
  • Stay up to date on vaccinations and respiratory infections
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Advocating For Yourself

  • Bring a loved one to appointments to help take notes and ask questions
  • Seek a second opinion if needed, especially about surgery or clinical studies

What Our Community Needs

We read the online discourse on IBD and found that our community is looking for:

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Better Representation

There’s a common misconception that IBD primarily affects white people. This belief leads to delayed diagnoses and inadequate treatment for Black individuals, and a lack of awareness within the community.

Better Access To Care

Black individuals often experience significant delays and misdiagnoses when seeking care for IBD. Symptoms are frequently mistaken for less severe conditions like Irritable Bowel Syndrome (IBS), leading to delayed or incorrect treatment.

Representation In Clinical Studies

The underrepresentation of Black people in clinical studies for IBD significantly impacts their healthcare experiences and outcomes. Without diverse data from clinical studies, Black people often receive treatments based on research primarily conducted on white populations.

Resources for Inflammatory Bowel Disease (IBD)

Many people with IBD live active, fulfilling lives. Explore the resources below.

Hear From Other People

Read LaTanja’s guide on living with IBD.

Find a GI Specialist Near You

Use this search tool to find a GI specialist that fits your racial and cultural background.

IBD-Friendly Soul Food

Explore soul food recipes and tips for eating well with your gut health in mind.

Resources for Inflammatory Bowel Disease (IBD)

Many people with IBD live active, fulfilling lives. Explore the resources below.

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