Living with chronic rhinosinusitis (CRS) can feel like being stuck in an endless cycle—blocked sinuses, sleepless nights, and constant trips to the doctor without clear answers. For some, it means losing simple joys like smelling your favorite meal or keeping up with loved ones. That’s the reality our community member Keema has been living with for years.
What started as an annoying stuffy nose at night turned into years of debilitating symptoms. By 2019, her sense of smell was completely gone, and doctors kept treating her symptoms as if they were temporary. “They told me it was just a sinus infection,” Keema recalls. “But I knew it was something more.
It wasn’t until she demanded answers that a CT scan finally revealed her sinuses were completely blocked. The diagnosis of CRS was both a relief and a heavy burden—it explained years of suffering but came with the sobering truth that she’d be managing this condition for the rest of her life.
Living with CRS Every Day
CRS has affected every part of Keema’s life. Activities she once loved, like playing golf, are no longer possible. Even simple outings with her grandkids are tough when her health flares up.
“There are days I just have to sit and let everyone else keep going,” she says. “It’s hard knowing I can’t do what I used to.”
Her severe asthma makes things even harder, especially at night when it’s almost impossible to breathe comfortably.
The Fight to Be Heard
Keema’s challenges didn’t stop at the physical symptoms. As a Black woman, she knows how often the healthcare system dismisses Black patients’ concerns.
“I really wanted to find a Black doctor because I didn’t want my pain brushed aside,” she shares. “But I couldn’t find one in my area.”
When searching for resources, she realized there weren’t many stories from people who looked like her. “It’s so important to see yourself reflected. When you hear from someone who understands your experiences, it makes a huge difference.”
A Message of Hope
Despite the ongoing challenges, Keema remains hopeful.
“I’m so happy to share my story with NOWINCLUDED because I’ve searched high and low for people who understand what I’m going through. I haven’t found them. I hope telling my story gives someone else comfort, hope, or answers. You’re not alone.”
Keema’s journey is a testament to resilience and the power of self-advocacy. Her advice to others navigating chronic conditions is simple:
“Ask questions. Demand better care. Don’t let anyone dismiss your symptoms. You know your body—trust yourself and fight for what you need.”
Keema’s story reminds us why representation and community matter. For more stories and tips on managing respiratory conditions, explore our lung health playlist on YouTube. Together, we can ensure no one feels alone in their health journey.
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