In Louisiana, we have one of the highest incidences of multiple myeloma in the country. As seventh in the nation for diagnosis, it’s important we educate ourselves about this condition, be able to spot the symptoms when they first appear, and talk to our doctors if we feel like something is wrong.
This event series is a collaboration between the Multiple Myeloma Research Foundation (MMRF) and Acclinate’s NOWINCLUDED community. Our goal is to bring education, resources, and support directly to communities that are disproportionately impacted by multiple myeloma, a rare blood cancer.
This event is for anyone who wants to learn more about multiple myeloma, a condition that impacts Black communities at a higher rate. We welcome patients, caregivers, family members, friends, and anyone interested in health equity to join a supportive space where you can connect, learn, and be inspired.
No, registration is completely free! We want this event to be accessible to everyone.
Yes, we will be offering a free lunch and refreshments for all attendees between 12:00 PM and 12:30 PM.
You can expect to hear from engaging speakers, including patients who are thriving, dedicated caregivers, and healthcare professionals. The goal is to provide you with valuable insights and motivate you to take charge of your health.
Yes, a major part of this event is community and connection. You will have the chance to meet others who are living with multiple myeloma, explore local resources, and become part of a supportive network.
For any questions, you can contact Joanna Sheppard, the Events Lead at NOWINCLUDED, at [email protected] or call 205-229-8162.
Dr. Andrew Dalovisio, a New Orleans native, directs the Myeloma, Lymphoma, and Cellular Therapy Program at Mary Bird Perkins Cancer Center. He earned his MD from LSU Health Sciences Center Shreveport, and completed his residency and fellowship at Rush University Medical Center. Dr. Dalovisio is a member of multiple professional societies and specializes in plasma cell disorders and lymphomas.
Alan Stephenson, a financial advisor, entrepreneur, and patient advocate, was diagnosed with multiple myeloma in 2016. He founded the Multiple Myeloma Warrior Community on Facebook, a vibrant support network that connects patients, caregivers, and advocates worldwide, and is Chief Patient Advisor for Polygon Health, creator of Multiple Myeloma Patient Connect. He uses his experience to educate, empower, and advocate for patients.
Michele James’s journey with multiple myeloma began unexpectedly at a dance rehearsal nearly five years ago, culminating in a life-changing diagnosis on April 14, 2020. After a stem cell transplant, she had four years of remission, but relapsed on the fourth anniversary of her diagnosis. Now 56, she is in deep remission with new treatment under Dr. Dalivisio, and continues to live, dance, and thrive.
Brittany James, daughter of resilient multiple myeloma thriver Michele James, became her primary caregiver after diagnosis, learning firsthand the challenges families face and the importance of advocacy, compassion, and perseverance. Inspired by her mother’s courage and firsthand experience, Brittany now advocates for patients and caregivers, raising awareness and championing resources to help others thrive.
Johnathan Johnson, a husband, father of four, personal trainer, and fitness enthusiast, was diagnosed with multiple myeloma and cardiac amyloidosis two years ago. On July 24, 2023, he became the first person in the US living with cancer to receive a heart transplant. Now in remission, Johnathan champions faith, family, prayer, and a never-give-up attitude, stressing the importance of a healthy lifestyle and positive mindset.
Jennifer “Mama Jenn” Turner, a multiple myeloma thriver, is the heart of New Orleans’ Community Book Center, a cultural landmark and educational resource for over 40 years. Mama Jenn’s passion for nurturing young minds and preserving Black literature has made her a pillar of strength, known for her humility and boundless community love, emphasizing, “It’s not what you read, but how you read.”
Charity Johnson, a Federal Investigator and entrepreneur from Slidell, Louisiana, resides in Dallas, TX. The second oldest of seven and a mother of two, Charity became a dedicated caregiver in 2022 when her brother was diagnosed with multiple myeloma. Her story and caregiver experience exemplifi es perseverance, love, and purpose.
John DeShazier, senior writer for NewOrleansSaints.com and New Orleans Pelicans radio analyst, is now using his platform to share his multiple myeloma journey after a June 2022 diagnosis following months of hip pain and misdiagnosis. He stresses listening to one’s body and seeking second opinions. DeShazier advocates for patient empowerment and research participation, especially to help the Black community overcome medical mistrust and secure quality healthcare.
