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Crohn’s Disease

Living fully with Crohn’s disease is possible. Find resources and a community to support you on your journey.

What Is Crohn's Disease?

Crohn’s disease is a type of inflammatory bowel disease (IBD) that causes chronic inflammation in the digestive tract, most commonly the small intestine or colon. It can lead to pain, fatigue, nutritional problems, and serious complications over time.

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Symptoms of
Crohn's Disease

Crohn’s symptoms vary from person to person—and they may come and go, or flare unexpectedly. Common signs include:

Gut Health

ABDOMINAL PAIN & CRAMPING

  • Especially after eating or during stress

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DIARRHEA

  • Frequent, urgent bowel movements, often with mucus or blood

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UNEXPLAINED WEIGHT LOSS

  • Losing weight without trying due to poor absorption or lack of appetite

ABDOMINAL PAIN & CRAMPING

  • Especially after eating or during stress

DIARRHEA

  • Frequent, urgent bowel movements, often with mucus or blood

UNEXPLAINED WEIGHT LOSS

  • Losing weight without trying due to poor absorption or lack of appetite

Want more information about this condition?

If you're experiencing these symptoms, advocate for a GI referral and testing like a colonoscopy or stool analysis.

Managing Flareups of Asthma

Living with asthma? Our community member, Eriel, knows a thing or two about
managing flare-ups or asthma attacks.

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Risk Factors
for Crohn's Disease

Here are a few factors that might put you at risk for Crohn’s disease:

  • Family History: If a parent or sibling has Crohn’s or IBD, your risk is higher
  • Race: Crohn’s is rising among Black Americans, yet many still face longer diagnosis delays
  • Age: Most people are diagnosed between 15 and 35
  • Smoking: Makes Crohn’s worse and may increase the risk of complications
  • Chronic Stress: May worsen inflammation and trigger flares
  • Delayed Diagnosis: Advocating for testing early can lead to better outcomes
  • Diet: While Crohn’s isn’t caused by food, certain foods can make symptoms worse
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Managing and Preventing Crohn's Disease

Crohn’s can’t be cured, but it can be managed. With the right tools, care team, and lifestyle adjustments, many people live full and active lives.

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Medications & Treatment Options

  • Anti-inflammatory drugs: Help reduce gut inflammation
  • Immune system suppressors: Calm the overactive immune response
  • Biologics: Target specific proteins that drive inflammation (like Humira, Remicade)
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Nutrition & Gut Health

No one-size-fits-all diet, but many find relief with:

  • Low-fiber diets during flares
  • Avoiding trigger foods like dairy, caffeine, or fried foods
  • Adding probiotics and nutrient-rich foods when in remission
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Accessing Clinical Studies

Clinical studies give you access to the latest treatments, but Black people remain underrepresented in research:

  • Ask your doctor if there are studies you might qualify for.
  • Learn how studies work, what they cost (often free!), and what questions to ask.

Managing Lung Cancer

When found early, lung cancer can be treated more effectively, but Black people are less likely to be offered curative treatments like surgery. Empowering our community with knowledge and advocacy can help close that gap.

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Medications

Common types of blood pressure medications include:

  • Diuretics (“water pills”): Help your body get rid of extra salt and water
  • ACE inhibitors & ARBs: Help relax your blood vessels
  • Calcium channel blockers: Help slow your heartbeat and ease vessel tension
  • Beta blockers: Reduce your heart rate and how hard it works
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Everyday Strategies

  • Reduce Salt: Aim for less than 1,500 mg per day
  • Manage Stress: Therapy, prayer, breathing exercises, joy
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Lifestyle Support

  • Eat Smart: Whole foods, fruits, veggies, low-fat dairy, whole grains
  • Move More: 30 minutes of activity most days
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Treatment Options

  • Surgery: To remove tumors when possible
  • Radiation Therapy: Uses high-energy rays to kill cancer cells
  • Chemotherapy: Destroys cancer cells throughout the body
  • Targeted Therapy & Immunotherapy: Newer options that use the body’s immune system to fight cancer
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Managing Side Effects and Recovery

  • Talk with your care team about fatigue, nausea, or trouble eating
  • Stay up to date on vaccinations and respiratory infections
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Advocating For Yourself

  • Bring a loved one to appointments to help take notes and ask questions
  • Seek a second opinion if needed, especially about surgery or clinical studies

What Our Community Needs

We read the online discourse on Crohn’s disease and found that our community is looking for:

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Ways To Combat Social Stigmas

The social stigma surrounding gastrointestinal symptoms creates significant barriers for many individuals with Crohn’s. Younger people often feel embarrassed to discuss symptoms like rectal bleeding, frequent diarrhea, or the urgent need for a bathroom.

Relief From Financial Burdens

People with Crohn’s frequently encounter significant financial and bureaucratic challenges when accessing treatments. Advanced medications are often prohibitively expensive, and securing insurance coverage can be a cumbersome process.

Improved Access To Quality Care

The Black community faces numerous treatment barriers when dealing with IBD. Many report feeling marginalized within the healthcare system, noting that they frequently encounter delays in referrals to specialists and access to advanced therapies. This not only prolongs their suffering but also heightens their sense of frustration and helplessness.

Resources for Crohn's Disease

Many people with Crohn’s disease live active, fulfilling lives. Explore the resources below.

Hear From Other People

Listen to how Deanna is navigating life with Crohn’s.

Find a GI Specialist Near You

Use this search tool to find a GI specialist that fits your racial and cultural background.

Care Tips For Our Community

Explore these tips for Black people with Crohn’s disease to get the best care.

Resources for Crohn's Disease

Many people with IBD live active, fulfilling lives. Explore the resources below.

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