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Immune-Related StoriesFrom Our Community

Our voices need a space in healthcare.
Hear from community members in our Immune-Related Conditions Circle.

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Jometra’s Story

her journey with lupus

Jometra was diagnosed with lupus around age 27, enduring flare-ups, hair loss, and fluctuating weight that led her to shave her head three times. She shares her story to raise awareness in the community.

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Wynn's Story

his journey with late stage lymphome

Wynn has survived late stage lymphoma twice through chemotherapy and a stem cell transplant. His story reminds us that the “journey is much bigger than the diagnosis.”

Feeling inspired? Your story could be the one that changes everything for someone else.

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Feeling inspired? Your story could be the one that changes everything for someone else.

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More Community Stories

partners quotes

"I dealt with a lot of anger at times, also hearing how my mom would be medically gaslit by doctors and then also hearing that she may have only so little time left to live... This isn't just a story about my mother, but it's also a story about me, because when she hurts, I hurt too."

- Daniel, lupus caregiver

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"My battle is of invisible illnesses, making it very difficult to diagnose at first. It took 5+ years to find some answers, and sadly, everyday matters when you're sick. I don't think the world acknowledges enough the other toll this illness has on you — the anxiety and the depression, the unknowns, not feeling in control as your own body attacks itself."

- Donna, living with ankylosing spondylitis and fibromyalgia

partners quotes

"It was devastating to say the least, as I was already working in the field helping others get the services they need to live a healthy, productive life. I saw the stigma and heard it too. People are out here and they won't even get tested for fear of what people will say — I want to be a bridge to help them get the help they need. I have HIV. It doesn't have me."

- Mia, living with HIV

partners quotes

"I was a successful Radiation Therapist before I had to give up on being in the clinic, and then file for disability. It took 4 years to get disability. I don't know why the government makes us fight so hard when we need their help."

- Brandy, living with sjögren's syndrome and fibromyalgia

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Joy’s Story

her journey with breast cancer and vitiligo

Joy has faced living with both vitiligo and breast cancer. Her story is a testament to resilience and living life joyfully despite the challenges.

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Joy's Story

her journey with breast cancer and vitiligo

Joy has faced living with both vitiligo and breast cancer. Her story is a testament to resilience and living life joyfully despite the challenges.

Feeling inspired? Your story could be the one that changes everything for someone else.

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Feeling inspired? Your story could be the one that changes everything for someone else.

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Roy's Story

his journey with prostate cancer

Roy is a prostate cancer survivor and advocate. His story encourages men to get tested early and “understand what they are fighting against.”

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Roy's Story

his journey with prostate cancer

Roy is a prostate cancer survivor and advocate. His story encourages men to get tested early and “understand what they are fighting against.”

Feeling inspired? Your story could be the one that changes everything for someone else.

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Feeling inspired? Your story could be the one that changes everything for someone else.

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Our Power, Our Health

If you still have questions, you are not alone.

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  • Get health resources we can trust
  • Share stories about our health
  • Feel empowered to make informed health decisions

Join the community built to improve our health.

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