Clicky

COGI's Equity in GI Conference 2024

Check out the community-centered solutions discussed for increasing representation in gut health research.

The Initiative

A dynamic hack-a-thon hosted by NOWINCLUDED ignited a wave of innovation.

Participants used their lived experiences as people living with gut conditions, advocates, and healthcare professionals to tackle five key areas of clinical research.

Thank you for sharing your perspectives with us! Check out a summary of what we gathered below.

div 7

Engaging 434 Attendees Through a Brunch and Learn Series in Michigan

We pulled together our favorite things: food, health education, and community, for informative panel discussions about MG.

div 8

Reaching 5,608 People Through a Social Media Challenge

We put participants in the shoes of people living with MG by simulating common MG symptoms to see how they’d react.

div 9

Educating 195 People Through an Online Quiz

We put our community members’ knowledge to the test to see if they could spot MG symptoms in daily scenarios. 


IMG 0089 scaled 1
IMG 0120 scaled 1
IMG 0082 scaled 1
IMG 0030 scaled 1

By The Numbers

Here’s how you are helping us make an impact.

Attendees during Advancements in Clinical Research discussion
0
Attendees during Acclinate’s gut health hack-a-thon
0

What You Shared

We wanted to hear from you on five main areas of interest when it comes to gut health research. Click on each section to learn more about the solutions proposed.

Untitled design 1 11

Key Themes: Personalized Communication, Positive Reinforcement, Accessible Information, Addressing Barriers

Some groups highlighted the potential of leveraging existing healthcare infrastructure (hospitals and health departments), social media platforms, and influencer marketing to raise awareness.

Other groups emphasized the need for frequent, relatable communication, and providing incentives to encourage participation.

Key Themes: Inclusivity, Addressing Specific Conditions, Accessibility and Convenience, Holistic Approach

Most groups focused on expanding the scope of research to include more populations and specific gut-related conditions. They also explored ways to reduce the financial burden on participants and improve communication through app updates.

Key Themes: Community Engagement, Targeted Outreach, Building Trust, Education & Follow-up

The specific strategies proposed by groups were: partnering with faith-based communities, community partner meetings, survey assessments, educational resources, and testimonials from real-life participants.

Key Themes: Regular Communication, Personalized Support, Positive Reinforcement, Information Sharing, Addressing Barriers

The specific strategies proposed by groups were: app-based check-ins, monthly in-person meetings, a buddy system, and providing resources to overcome potential barriers to participation, such as transportation or technology access.

Key Themes: Long-term Tracking, Transparency, Data Sharing

Groups discussed specific considerations such as data privacy and security to protect participant information, standardizing data collection across the board, gathering qualitative data (versus quantitative), and leveraging technology to identify patterns.

Clinical Research: YAY OR NAY?

When asked if attendees would participate in clinical research…

said they considered it as an option for treating their gut health condition
0 %

Join Our Community

Over 100K community members across the US are making a difference in their health. Are you ready to take action?

Already part of the community? Login here.

First Name *
Last name *
Phone Number *
Zip Code *
Email Address *
Password *
Interested Health Topics
Tell us how we can best serve you!
Would you like to receive text message updates from us?

By signing up for Acclinate’s NOWINCLUDED community, you agree to Acclinate’s Terms of Use and Privacy Policy.

Download Every Kidney Counts Assets

Download Rooted Resilience Assets

Skip to content