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pulmonary sarcoidosis

Difficulty breathing, coughing, and chest pain? Living with pulmonary sarcoidosis can be challenging. Help manage your symptoms with these resources.

About this Campaign

Pulmonary sarcoidosis is a rare lung disease which develops when a small group of cells cause the lungs to become swollen (inflammation). People with pulmonary sarcoidosis might feel tired a lot (fatigue), experience trouble breathing, chest pain, and a dry cough. While it often improves within a few years, for some, it can last longer and even return after treatment. 

Doctors don’t know what exactly causes sarcoidosis, but they think it might come from a mix of things in your genes and your environment. What we do know is Black women in the U.S. are three times more likely to develop sarcoidosis than white women and white men. Which is why it’s important to raise awareness, provide support, and increase access to proper medical care for those affected. Find more information below. 

Learn more about respiratory (lung) issues.

Pulmonary Sarcoidosis Resources

Check out these resources tailored to pulmonary sarcoidosis.

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My Life & Breath Sarcoidosis Planner

A planner can be a helpful tool for managing pulmonary sarcoidosis by keeping track of appointments, medications, and symptoms. 

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Get Involved with Research

By participating in clinical research, you have the opportunity to access to investigational medicines and have your health closely monitored by experts.

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Caring Hands Sarcoidosis Foundation

The Caring Hands Sarcoidosis Foundation is a nonprofit organization dedicated to offering education and resources to improve the lives of those affected by this condition.

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Follow along with Dr. Shukla

Dr. Shukla is breaking down medical barriers for Black people. His research on rare diseases and emphasis on building trust has been a game changer in the narrative for our community.

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For more information on Sarcoidosis, join our community below. 

Hazel's Sarcoidosis Story

Pulmonary sarcoidosis didn't just affect Hazel's lungs, but every aspect of her life. Learn more about how she's managing life post-diagnosis, and what she wants her community to know.

Hazel’s Journey

Thriving Through Diagnosis

Learn more ways to manage lung health.

Dr. Mathai's Impact

When we are part of the research, we feel the results. Dr. Mathai’s team advocates for clinical research and treatment options that help people like us.

Why Clinical Research Matters

Help advance care for Black people.

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