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Unseen, Unheard, Undiagnosed: Terry Gene Wright’s Lifelong Struggle with CF

https://www.youtube.com/watch?v=vbyvRCELQFg&t=6s
54 YEARS LATE: The Terry Wright Story

54 YEARS LATE” is a short film that tells the gut-wrenching true-life story of Terry Gene Wright, a 58-year-old African American man who was not diagnosed with Cystic Fibrosis (CF) until the age of 54 despite being seen by an array of healthcare practitioners, enduring countless hospitalizations and surgeries, and having all the classic symptoms of CF – a progressive and genetic disease that’s often perceived to affect only the Caucasian population. Written and directed by Michele Wright, Ph.D., and produced by Butterbean Productions, this movie emotionally depicts Terry’s roughly 5 ½-decade painful and surreal journey from childhood to adulthood to finally being diagnosed with CF “54 YEARS LATE”!

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